Parkinson's Research and Clinical Trials
The following is a list of Parkinson's Research and/or Clinical Trials being conducted in the Georgetown area. Many of these trials and research studies do not involve medications and are just question/answer research. Always check with your doctor before changing currently prescribed medications.
- Parkinson’s Genetics – PD GENEration! (YES, we are in this study!)
Learn more in this video. https://www.youtube.com/watch?v=QBYiMI6Nb8g
- LaGrippe Research is working on a project on the topic of Parkinson’s Disease. The purpose of this project is to understand the experiences of those living with PD, and reactions to a hypothetical new future treatment and its perceived relevance.
This project will consist of two parts, first being a 15–20-minute pre-task exercise where we will ask you to map out your journey and any significant moments you have experienced with PD so far. This pre-task can be done at a time convenient to you. Once this is complete, we will invite you take part in a 60-minute Zoom call. If you qualify and participate in this project you will be compensated $125 as a thank you. Discussions will take place the second week of July.
If you are interested, please fill out our preliminary questions online here: https://www.surveymonkey.com/r/V7SM79C
If you have any questions or concerns please contact Maggie at 847-373-4104 or email maggie@lagripperesearch.com
Thanks!
Maggie Barber
Director
847-373-4104
www.lagripperesearch.com
- This study closes July 31st! The Georgetown Neurosciences Foundation, Georgetown TX was conceived by the collaboration of its incorporators to serve as a secure and managed resource where seniors and their families will commit their medical information for medical research. “You” can join the Georgetown Brain Study. In joining this study you will become part of a large community of study subjects of all ages that will share information on their brain health and health changes several times a year in an anonymous and FDA compliant web portal to be provided later. This study will engage many people from Georgetown, our central Texas region, and the world and keep you up to date on the latest advances in neurological health.
https://georgetownneurosciencefoundation.org/study-participant-entry/ - Our May 2021 speaker was Michael Kortschak, MCN, RDN, LD http://www.foodconnectionnutrition.com spoke about
“Your Diet and Parkinson’s”! It was a GREAT meeting and if you missed it, you can watch it here:
https://www.youtube.com/watch?v=JnV1-FNk5-k
Michael will be doing some research and developing a dietary program on the Mediterranean Diet and needs volunteers! The concept is meeting with an individual or couple in their homes and discussing how to incorporate the Mediterranean Diet into their daily lifestyle. The only criteria is for the couple/individual to be open, honest, and provide constructive feedback and since it is in development completely free of charge! If you are interested, please contact Michael at
michael@foodconnectionnutrition.com #512-270-8741
- Local research at Texas Movement Disorder Specialists, PLLC: Clinical Research | txmds
- Research links mentioned during Dr. Peckham's presentation on Feb 25, 2021
- https://foxinsight.michaeljfox.org/
- https://www.clinicaltrials.gov/
- https://www.michaeljfox.org/trial-finder
- https://scienceofparkinsons.com/2021/01/01/2020-review/
- https://www.michaeljfox.org/your-role-research
- Exercise at TX State-- local opportunity
Email: dgobert@txstate.edu
Central Texas Neurology Consultants: Dr. Peckham: 512-218-1222 x 214 Koni
Texas Movement Disorder Specialists: Dr. Soileau: 512-693-4041
- The TRAILBLAZER-ALZ 2 Clinical Research Study is evaluating whether an investigational drug works and how safe it is in people with early symptomatic Alzheimer’s disease. The study involves people who have memory loss that has gotten worse over the last six months or more. If you are noticing changes in your memory or ability to think clearly, you may pre-qualify.
More info on the study: Click here
- TELEHEALTH SPEECH STUDY - The Motor Speech Laboratory at Purdue University is looking for individuals to participate in a telehealth study on speech. This study has 5 sessions over a period of a month and all sessions are completed online. Participants will be asked to interact with a computer-generated interaction, Nina, while producing different facial movements, providing speech samples and completing surveys. Both video and audio will be recorded during these sessions. Participants will be compensated $10.00 per session with a $20.00 bonus for completing all sessions. Jessica Huber, Ph.D., is the Principal Investigator for this study. To participate, you must meet the following criteria:
- Diagnosis of idiopathic Parkinson disease
- Age 30-85
- Fluent in English
- Normal language and cognition
- No history of neurological diseases (other than Parkinson disease) or pulmonary disease
- No history of head, neck or chest surgery
- Have access to an internet and web-camera enabled device
- Have adequate hearing (with or without amplification) to process verbal instruction and adequate vision to see the computer screen
- Non-smoking for the last 5 years
- YOGA Research - Keilie Heinrich, second year of the Physical Therapy program at Texas State in Round Rock is conducting a research project on Parkinson’s Disease to compare the benefits of a standardized Parkinson’s treatment to a yoga program. I am looking for participants for this study, which will take place in March of this year. It is completely FREE and due to COVID will be mostly based on a virtual treatment plan. Please contact Keilie at: kkh79@txstate.edu
- Parkinson's Progression Markers Initiative (PPMI). Parkinson's Progression Markers Initiative | (ppmi-info.org) The Parkinson's Progression Markers Initiative (PPMI) is a landmark study launched in 2010 to find biomarkers -- disease indicators that are critical missing links in the search for better Parkinson's disease (PD) treatments. Please complete the questions below to determine your next steps in the study. Learn more about PPMI and this screening form.
- Parkinson’s and Genetics - Have you wondered if your or your loved one’s Parkinson’s diagnosis can be linked to genetics? Learn more about our newest research initiative, PD GENEration: Mapping the Future of Parkinson’s Disease.
- KYNMOBI Research - SHARING YOUR STORY COULD HELP OTHERS! Seeking KYNMOBI Ambassadors: patients being treated with KYNMOBI for short-term (acute), intermittent treatment of morning OFF times (and other types of OFFs) associated with Parkinson’s disease (PD) who are interested in sharing their stories with people in the PD community. We are looking for people who: • Experience morning OFF times (and other types of OFFs) associated with Parkinson’s disease • Are currently taking KYNMOBI for at least 60 days • Are between the ages of 45–70 CONTACT: CALL TOLL-FREE: 1-833-834-0338 EMAIL: Tonia@MyPatientStory.com
- Dr Peckham has ongoing clinical trials at CTNC. If you are interested, call 512-218-1222 and ask for Koni ext#214 or Cyndel #211
- This research project is aimed at looking at the current knowledge about PD-related symptoms among folks with Parkinson Disease and their family members. In addition, we are interested in identifying the current met and unmet needs of the PD community. We plan to reach as many people as possible in Oklahoma and surrounding states of Texas, Arkansas, Kansas, Colorado, and New Mexico. A portion of the study will be completed as part of a graduate thesis project. The surveys will take approximately 30-45 minutes to complete.
QUESTIONS: Jaelan Moore (832)-330-4696 jaelan.d.moore@okstate.edu
Brain Donations - The importance of brain donation is to help advance science that can lead to the treatment and cure of neurological, neuropsychiatric and neurodevelopmental disorders. Here are several resources to learn more:
- https://www.parkinson.org/pd-library/fact-sheets/brain-donation
- https://www.psp.org/ineedsupport/braindonation/
- https://www.brainsupportnetwork.org/brain-donation/
- https://www.apdaparkinson.org/community/st-louis/resources-support-stl/other-resources/brain-donation/
Parkinson’s Foundation Launches First-of-its-Kind Genetic Study - Launched a new trailblazing genetics study, called PD GENEration: Mapping the Future of Parkinson’s Disease. This first-of-its kind national initiative offers FREE genetic testing for common Parkinson’s disease (PD) related genes and genetic counseling. Learn more: https://www.parkinson.org/pdgeneration
Texas State “Yoga” Research Opportunity - Students in the Doctor of Physical Therapy program at Texas State University in Round Rock would like to invite you to participate in a research study. Their goal is to study the effects that yoga may have on people diagnosed with Parkinson’s disease. Yoga is a gentle form of exercise that involves putting your body into a position and holding that position for a short amount of time. The study will require participants in the intervention group to attend 2 testing sessions, a yoga class, and participate in a home yoga program 2 times per week for 8 weeks. Participants in the control group will attend 2 testing sessions and will be given the yoga program after the study is over. There is screening criteria to participate, please contact Catherine Madsen 512-638-2843 or cam281@txtstate.edu
Parkinson’s VOICE Research - Steven Darroh is a speech-language pathologist interested in working with voice issues in people with Parkinson’s Disease. He would like to interview some people with Parkinson’s, either over the phone or in person. The interview will likely last between 5 and 10 minutes, and will consist of a set of standardized questions. He is seeking to “hone in” on the biggest issues facing people with PD from a speech pathology standpoint. Please reach out to Steven, if you’re interested by email, call, or text. Steven Darroh, stevendarroh@gmail.com 713-899-6750
Healthy Aging Research - Researchers from Texas A&M University are inviting those who are 65 years or older (up to 2 participants per household) to take part in a survey on healthy aging. The survey will take about 20-30 minutes to complete, and you will be offered $10 gift card. If you have any questions, please contact the study director, Sinan Zhong, at 979-255-6755 or email zsn198838@tamu.edu.
Fox Foundation and 23andMe Launch Data Platform Fox DEN to Help Accelerate Research Efforts - The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and 23andMe announced the launch of a data and analytics resource for researchers, based on patient experiences, that aims to improve clinical trial design and subsequently, therapies for Parkinson’s. Called the Fox Insight Data Exploration Network (Fox DEN), it’s the platform for Fox Insight, an online, MJFF-sponsored clinical study about health-related experiences from volunteers with and without Parkinson’s disease. Fox DEN features patient reported outcomes, de-identified (for privacy) genetic data, and information exploration tools from what’s known as the most expansive cohort in Parkinson’s investigations. click on this link to learn more: Fox Foundation and 23andMe Launch Data Platform Fox DEN to Help Accelerate Research Efforts
More Michael J Fox Foundation Clinical Trials - The Fox Trial Finder is an online clinical trial matching tool created by The Michael J. Fox Foundation to make it easier for Parkinson's patients and their loved ones to participate in Parkinson's research. To date, more than 30,000 volunteers have signed up to be matched with more than 300 ongoing PD clinical trials worldwide.
Click here to sign up: https://www.michaeljfox.org/page.html?Find-a-Trial
ClinicalTrials.gov - ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world. Click here to see current clinical trials - https://www.clinicaltrials.gov/
More clinical trial resources:
✦Lewy Body Clinical Trials - https://www.lbda.org/rcoe/current-clinical-trials
✦PD Trial Tracker - analyzing ClinicalTrials.gov for Parkinson’s specific trials — http://www.pdtrialtracker.info
✦ Fox Trial Finder — https://foxtrialfinder.michaeljfox.org
✦ European Parkinson’s Disease Association — https://www.epda.eu.com/about-parkinsons/treatments/clinical-trials/
✦ UK NHS Clinical Trials Gateway -- https://www.ukctg.nihr.ac.uk
✦ Cure Parkinson’s Trust — https://www.parkinsonsmovement.com/clinical-trials/
✦ Parkinson’s Study Group — http://www.parkinson-study-group.org/clinical-trials
✦ American Parkinson Disease Association --https://www.apdaparkinson.org/research/clinical-trials/
✦ Center Watch --https://www.centerwatch.com/clinical-trials/listings/condition/117/parkinsons-disease/
✦ My Parkinson’s Team — Read more about the RESTORE-1 Clinical Study
✦ PSP Research - AllStripes is a research platform designed for rare disease, where patients can contribute to research and accelerate drug development. For more information: https://www.allstripes.com/psp
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