Parkinson's Research and Clinical Trials

The following is a list of Parkinson's Research and/or Clinical Trials being conducted in the Georgetown area.  Many of these trials and research studies do not involve medications and are just question/answer research.  Always check with your doctor before changing currently prescribed medications.

• We’re LaGrippe Research and we’re currently working on a Parkinson’s Disease project.   
  We are inviting individuals diagnosed with Parkinson’s Disease & the caregivers (family/friends) who help them, to participate in a qualitative research study.  
   
  Patients: Those that qualify and participate will be invited to participate in a 3 part project for a compensation of $500. (1) 5-day video log, (2) 5-day online community (3) $125 for a 60-minute follow-up interview.
  If you are interested, please fill out our preliminary questions online here: 
  https://www.surveymonkey.com/r/5SV63X7
   
  Caregivers: Those that qualify and participate will be compensated $250 for 5-day online community. 
  If you are interested, please fill out our preliminary questions online here:  
  https://www.surveymonkey.com/r/5SXKSCJ
   
  All applications for this study should be submitted prior to Thursday, May 21st . If you have any questions, please contact Alex at 224-360-7929 or email alexander@lagripperesearch.com     
   ​
• Studies for PD patients at Central Texas Neurology Consultants

Please contact Koni Lopez at Central Texas Neurology Consultants- 512-218-1222 x 214 or k.lopez@ctncpa.org for additional information.



• ​Online research study opportunity – GAPS members have been invited to participate and you receive $20 for your time.  The Cognition and Action lab at the University of California Berkeley is conducting a new online research study for individuals with Parkinson’s disease. The study is part of a basic research program to understand how these disorders impact various aspects of human performance. It is NOT a clinical trial and will not impact your medical care. Because the study is online it can be completed from a personal computer whenever it is convenient for you. The study will take about one hour. Participants will be paid $20 for their time, with payment sent by check or in the form of a gift card to their home.  If you are interested in learning more about this study, please press this link (http://ivrylab.berkeley.edu/participate-in-our-research.html). It will take you to a page on the lab website that describes the study and, for those interested, includes a sign-up form. If you have any questions, please contact the lead investigator, Prof. Richard Ivry at ivrycognac@berkeley.edu   Professor of Psychology and Neuroscience,  Department of Psychology,  University of California, Berkeley, CA 94720 email:    ivry@berkeley.edu​

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Brain Donations - The importance of brain donation is to help advance science that can lead to the treatment and cure of neurological, neuropsychiatric and neurodevelopmental disorders.  Here are several resources to learn more:

• https://www.parkinson.org/pd-library/fact-sheets/brain-donation  
• https://www.psp.org/ineedsupport/braindonation/ 
• https://www.brainsupportnetwork.org/brain-donation/   
• https://www.apdaparkinson.org/community/st-louis/resources-support-stl/other-resources/brain-donation/ 

Parkinson’s Foundation Launches First-of-its-Kind Genetic Study - Launched a new trailblazing genetics study, called PD GENEration: Mapping the Future of Parkinson’s Disease. This first-of-its kind national initiative offers FREE genetic testing for common Parkinson’s disease (PD) related genes and genetic counseling.  Learn more: https://www.parkinson.org/pdgeneration

Texas State “Yoga” Research Opportunity - Students in the Doctor of Physical Therapy program at Texas State University in Round Rock would like to invite you to participate in a research study. Their goal is to study the effects that yoga may have on people diagnosed with Parkinson’s disease. Yoga is a gentle form of exercise that involves putting your body into a position and holding that position for a short amount of time. The study will require participants in the intervention group to attend 2 testing sessions, a yoga class, and participate in a home yoga program 2 times per week for 8 weeks. Participants in the control group will attend 2 testing sessions and will be given the yoga program after the study is over. There is screening criteria to participate, please contact Catherine Madsen 512-638-2843 or cam281@txtstate.edu   

Parkinson’s VOICE Research - Steven Darroh is a speech-language pathologist interested in working with voice issues in people with Parkinson’s Disease.  He would like to interview some people with Parkinson’s, either over the phone or in person.  The interview will likely last between 5 and 10 minutes, and will consist of a set of standardized questions. He is seeking to “hone in” on the biggest issues facing people with PD from a speech pathology standpoint. Please reach out to Steven, if you’re interested by email, call, or text.  Steven Darroh, stevendarroh@gmail.com 713-899-6750

Healthy Aging Research - Researchers from Texas A&M University are inviting those who are 65 years or older (up to 2 participants per household) to take part in a survey on healthy aging. The survey will take about 20-30 minutes to complete, and you will be offered $10 gift card.   If you have any questions, please contact the study director, Sinan Zhong, at 979-255-6755 or email zsn198838@tamu.edu.

Fox Foundation and 23andMe Launch Data Platform Fox DEN to Help Accelerate Research Efforts - The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and 23andMe announced the launch of a data and analytics resource for researchers, based on patient experiences, that aims to improve clinical trial design and subsequently, therapies for Parkinson’s. Called the Fox Insight Data Exploration Network (Fox DEN), it’s the platform for Fox Insight, an online, MJFF-sponsored clinical study about health-related experiences from volunteers with and without Parkinson’s disease. Fox DEN features patient reported outcomes, de-identified (for privacy) genetic data, and information exploration tools from what’s known as the most expansive cohort in Parkinson’s investigations. click on this link to learn more: Fox Foundation and 23andMe Launch Data Platform Fox DEN to Help Accelerate Research Efforts

More Michael J Fox Foundation Clinical Trials -  The Fox Trial Finder is an online clinical trial matching tool created by The Michael J. Fox Foundation to make it easier for Parkinson's patients and their loved ones to participate in Parkinson's research. To date, more than 30,000 volunteers have signed up to be matched with more than 300 ongoing PD clinical trials worldwide.
Click here to sign up:  https://www.michaeljfox.org/page.html?Find-a-Trial

ClinicalTrials.gov - ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world.  Click here to see current clinical trials - https://www.clinicaltrials.gov/

More clinical trial resources:

✦Lewy Body Clinical Trials - https://www.lbda.org/rcoe/current-clinical-trials 
✦PD Trial Tracker - analyzing ClinicalTrials.gov for Parkinson’s specific trials — http://www.pdtrialtracker.info
✦ Fox Trial Finder — https://foxtrialfinder.michaeljfox.org
✦ European Parkinson’s Disease Association — https://www.epda.eu.com/about-parkinsons/treatments/clinical-trials/
✦ UK NHS Clinical Trials Gateway -- https://www.ukctg.nihr.ac.uk
✦ Cure Parkinson’s Trust — https://www.parkinsonsmovement.com/clinical-trials/
✦ Parkinson’s Study Group — http://www.parkinson-study-group.org/clinical-trials
​✦ American Parkinson Disease Association --https://www.apdaparkinson.org/research/clinical-trials/
✦ Center Watch --https://www.centerwatch.com/clinical-trials/listings/condition/117/parkinsons-disease/
✦ My Parkinson’s Team — Read more about the RESTORE-1 Clinical Study