Parkinson's Research and Clinical Trials

The following is a list of Parkinson's Research and/or Clinical Trials being conducted in the Georgetown area. Many of these trials and research studies do not involve medications and are just question/answer research. Always check with your doctor before changing currently prescribed medications.

Participants Wanted for a Research Study
Examining the exercise and physical activity needs and values of people with Parkinson’s disease

Our partners at the University of Connecticut's goal is to improve the lives of individuals living with Parkinson’s disease through the combination of exercise, support, and technology.

They are looking for people with Parkinson’s disease to participate in a discussion that will be held virtually or in person. Participants will be asked questions about their beliefs, values, and needs for exercise in a group session. The duration of the group session will be 1-2 hours. Participants can select if they would like to participate in a conversation in English or Spanish.
Participants will not benefit from this research. However, they may help others with
Parkinson’s disease to adopt and sustain exercise to better manage their disease.

Participants can select whether they want to participate in person or through a virtual conference meeting. In-person sessions will take place at the University of Connecticut, Kinesiology building, 3107 Horsebarn Hill Rd, Storrs, CT or UConn Health, Outpatient Pavilion, 135 Dowling Way, Farmington, CT.

A $50 gift card will be provided to participants after the completion of the research study.

To learn more about this research, contact Cristina Colón-Semenza at cristina.colonsemenza@uconn.edu or 860-486-0019. This research is conducted under the direction of Cristina Colón-Semenza, University of Connecticut.
Research studies at the cognition and action lab (http://ivrylab.berkeley.edu/), focused on the impact of Parkinson's Disease on movement and cognition.

We are currently recruiting participants for a 1 hour online study that involves using your computer trackpad or mouse. This session will take place over Zoom, Skype, Whatsapp, or whichever method you prefer. If video meetings are new to you, we can also help you set it up over the phone.

If you are interested in participating, please click here to schedule an appointment. You will be reimbursed $20 for your participation, with your preferred methods of payment (e.g., paypal).

If you have any questions, please do not hesitate to email or call (714-477-3424).
Rich Ivry
Professor
Department of Psychology
MC 1650
2121 Berkeley Way, 3rd Floor
University of California
Berkeley, CA 94720
Research Participation Invitation: Benefits of Yoga for People with Parkinson’s Disease - GAPS members are invited participation in this “Yoga” study because of your diagnosis of Parkinson’s Disease. The study consists of a survey made up of questions that take a look at the amount of difficulty that you have with motor and non-motor experiences of daily living. The survey will take about 15 minutes to complete and the anticipated benefit of your participation is that the results may contribute to the body of knowledge on Parkinson’s disease and the best practices in treating this condition. To participate in this research or ask questions about this research, please contact:

Keilie Heinrich, SPT kkh79@txstate.edu
Bradley Wong: Bmw168@txstate.edu
Emily Lowry: emlowry2@txstate.edu
Emily Tobben: ent24@txstate.edu
QUESTIONS: Dr. Denise Gobert 512-716-2652 dgobert@txstate.ed

Michael J Fox Foundation's landmark Parkinson’s Progression Markers Initiative (PPMI) seeks to transform how we diagnose, treat and potentially prevent Parkinson’s. So far, 60,000 volunteers — everyday people just like you, with and without Parkinson’s — have taken the first step to join PPMI. Tens of thousands more are needed, especially men. We have reserved the next spot in the study for you. We hope you’ll get started today. Click here to start.

Fox Insight is an online clinical study where people with Parkinson's disease and their loved ones share information that could transform the search for better treatments. The Michael J. Fox Foundation has partnered with the world's leading consumer genetics company 23andMe to assemble a more complete picture of Parkinson's by integrating genetic and patient-reported data.

For more info: Parkinson’s disease patient-focused research study | Fox Insight (michaeljfox.org)

Parkinson’s Genetics – PD GENEration! Join the Study - PD GENEration: Mapping the Future of Parkinson’s Disease is a national initiative that offers genetic testing for clinically relevant Parkinson's-related genes and genetic counseling at NO COST for people with Parkinson’s disease. At-Home Test - PD GENEration is also offered through an at-home test. To schedule your at-home appointment, enroll now. https://www.parkinson.org/PDGENEration

Learn more in this video. https://www.youtube.co

Building a Data Base for Automatic Speech Recognition in Parkinson’s disease – LSVT Global has partnered with Google on an exciting research project called Project Euphonia to help improve automatic speech recognition software for people with speech disorders. These disorders may make using devices like Google Home, The Nest and other Smart devices, Siri, Alexa, or speech-to-text frustrating. To do this, we need samples of disordered speech to train the system. LSVT Global is recruiting people with speech disorders to help! Click here: https://blog.lsvtglobal.com/project-euphonia/m/watch?v=QBYiMI6Nb8g

Telehealth Speech Study - The Motor Speech Laboratory at Purdue University is looking for individuals to participate in a telehealth study on speech. This study has 5 sessions over a period of a month and all sessions are completed online. Participants will be asked to interact with a computer-generated interaction, Nina, while producing different facial movements, providing speech samples and completing surveys. Both video and audio will be recorded during these sessions. Participants will be compensated $10.00 per session with a $20.00 bonus for completing all sessions. Jessica Huber, Ph.D., is the Principal Investigator for this study. See Telemedicine Study Recruitment - Motor Speech Lab (purdue.edu) for more info participation criteria.

If you are interested, contact: Sandy Snyder in the Motor Speech Laboratory at (765) 494-6488 or email snyder33@purdue.edu for more information.

This research project is aimed at looking at the current knowledge about PD-related symptoms among folks with Parkinson Disease and their family members. In addition, we are interested in identifying the current met and unmet needs of the PD community. We plan to reach as many people as possible in Oklahoma and surrounding states of Texas, Arkansas, Kansas, Colorado, and New Mexico. A portion of the study will be completed as part of a graduate thesis project. The surveys will take approximately 30-45 minutes to complete.

SURVEY: https://okstatecas.co1.qualtrics.com/jfe/form/SV_1TRtoZib8ZnP9NH
QUESTIONS: Jaelan Moore (832)-330-4696 jaelan.d.moore@okstate.edu

PSP Research - AllStripes is a research platform designed for rare disease, where patients can contribute to research and accelerate drug development. For more information: https://www.allstripes.com/psp

allstripes-psp-ucb-flyer-20210429.pdf
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Other research links

The Fox Trial Finder is an online clinical trial matching tool created by The Michael J. Fox Foundation to make it easier for Parkinson's patients and their loved ones to participate in Parkinson's research. To date, more than 30,000 volunteers have signed up to be matched with more than 300 ongoing PD clinical trials worldwide.
Click here to sign up: https://www.michaeljfox.org/page.html/Find-a-Trial or https://www.michaeljfox.org/trial-finder or  https://foxtrialfinder.michaeljfox.org

ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world.  Click here to see current clinical trials - https://www.clinicaltrials.gov/

PD Trial Tracker - analyzing ClinicalTrials.gov for Parkinson’s specific trials — http://www.pdtrialtracker.info

European Parkinson’s Disease Association — https://www.epda.eu.com/about-parkinsons/treatments/clinical-trials/

Cure Parkinson’s Trust — https://www.parkinsonsmovement.com/clinical-trials/

Parkinson’s Study Group — http://www.parkinson-study-group.org/clinical-trials

American Parkinson Disease Association --https://www.apdaparkinson.org/research/clinical-trials/

Center Watch --https://www.centerwatch.com/clinical-trials/listings/condition/117/parkinsons-disease/

Advancing Research | Parkinson's Foundation

Local research at:
Texas Movement Disorder Specialists, PLLC:  Clinical Research | txmds
Central Texas Neurology Consultants: Dr. Peckham: 512-218-1222 x 214/211 (Koni/Cyndel)

Brain Donations - The importance of brain donation is to help advance science that can lead to the treatment and cure of neurological, neuropsychiatric and neurodevelopmental disorders. Here are several resources to learn more: