Parkinson's Research and Clinical Trials
The following is a list of Parkinson's Research and/or Clinical Trials being conducted in the Georgetown area. Many of these trials and research studies do not involve medications and are just question/answer research. Always check with your doctor before changing currently prescribed medications.
- Michael J Fox Foundation Research Study! RTI Health Solutions (RTI-HS), a non-profit research organization located in Research Triangle Park, North Carolina and MJFF have teamed up for a research opportunity!!! They are looking for people in the U.S., that are between the ages of 30 and 83 years old, with Parkinson’s disease who are taking levodopa and who experience times every day when their Parkinson’s medication dose “wears off or does not start working soon enough” to control their symptoms.
Participation would involve an interview that would last approximately 60 minutes. The interview will be conducted over Zoom, so that interviewers can share the survey documents on the screen. Web cameras will not be used during the interview, however interviews will be audio recorded so that researchers don’t miss anything participants say. All audio recordings will be destroyed at the end of the study. Participants will be sent a link via email to join the Zoom call and should be comfortable using a computer or have someone there to help them use the computer during the interview. Participants will be asked questions about their experiences with, and preferences for treatments for Parkinson’s disease.
People who are eligible and complete the interview, will be compensated with $100 for their time. This research study does not involve any medication. They will comply with all relevant laws protecting personal data with respect to anonymity and confidentiality. If you are interested, please contact Kimberly Tronolone, Advancement Officer, THE MICHAEL J. FOX FOUNDATION FOR PARKINSON’S RESEARCH ktronolone@michaeljfox.org
- Parkinson’s and Genetics - Have you wondered if your or your loved one’s Parkinson’s diagnosis can be linked to genetics? Learn more about our newest research initiative, PD GENEration: Mapping the Future of Parkinson’s Disease.
- KYNMOBI Research - SHARING YOUR STORY COULD HELP OTHERS! Seeking KYNMOBI Ambassadors: patients being treated with KYNMOBI for short-term (acute), intermittent treatment of morning OFF times (and other types of OFFs) associated with Parkinson’s disease (PD) who are interested in sharing their stories with people in the PD community. We are looking for people who: • Experience morning OFF times (and other types of OFFs) associated with Parkinson’s disease • Are currently taking KYNMOBI for at least 60 days • Are between the ages of 45–70 CONTACT: CALL TOLL-FREE: 1-833-834-0338 EMAIL: Tonia@MyPatientStory.com
- Dr Peckham has ongoing clinical trials at CTNC. If you are interested, call 512-218-1222 and ask for Koni ext#214 or Cyndel #211
- This research project is aimed at looking at the current knowledge about PD-related symptoms among folks with Parkinson Disease and their family members. In addition, we are interested in identifying the current met and unmet needs of the PD community. We plan to reach as many people as possible in Oklahoma and surrounding states of Texas, Arkansas, Kansas, Colorado, and New Mexico. A portion of the study will be completed as part of a graduate thesis project. The surveys will take approximately 30-45 minutes to complete.
QUESTIONS: Jaelan Moore (832)-330-4696 jaelan.d.moore@okstate.edu
- Online research study opportunity – GAPS members have been invited to participate and you receive $20 for your time. The Cognition and Action lab at the University of California Berkeley is conducting a new online research study for individuals with Parkinson’s disease. The study is part of a basic research program to understand how these disorders impact various aspects of human performance. It is NOT a clinical trial and will not impact your medical care. Because the study is online it can be completed from a personal computer whenever it is convenient for you. The study will take about one hour. Participants will be paid $20 for their time, with payment sent by check or in the form of a gift card to their home. If you are interested in learning more about this study, please press this link (http://ivrylab.berkeley.edu/participate-in-our-research.html). It will take you to a page on the lab website that describes the study and, for those interested, includes a sign-up form. If you have any questions, please contact the lead investigator, Prof. Richard Ivry at ivrycognac@berkeley.edu Professor of Psychology and Neuroscience, Department of Psychology, University of California, Berkeley, CA 94720 email: ivry@berkeley.edu
Brain Donations - The importance of brain donation is to help advance science that can lead to the treatment and cure of neurological, neuropsychiatric and neurodevelopmental disorders. Here are several resources to learn more:
- https://www.parkinson.org/pd-library/fact-sheets/brain-donation
- https://www.psp.org/ineedsupport/braindonation/
- https://www.brainsupportnetwork.org/brain-donation/
- https://www.apdaparkinson.org/community/st-louis/resources-support-stl/other-resources/brain-donation/
Parkinson’s Foundation Launches First-of-its-Kind Genetic Study - Launched a new trailblazing genetics study, called PD GENEration: Mapping the Future of Parkinson’s Disease. This first-of-its kind national initiative offers FREE genetic testing for common Parkinson’s disease (PD) related genes and genetic counseling. Learn more: https://www.parkinson.org/pdgeneration
Texas State “Yoga” Research Opportunity - Students in the Doctor of Physical Therapy program at Texas State University in Round Rock would like to invite you to participate in a research study. Their goal is to study the effects that yoga may have on people diagnosed with Parkinson’s disease. Yoga is a gentle form of exercise that involves putting your body into a position and holding that position for a short amount of time. The study will require participants in the intervention group to attend 2 testing sessions, a yoga class, and participate in a home yoga program 2 times per week for 8 weeks. Participants in the control group will attend 2 testing sessions and will be given the yoga program after the study is over. There is screening criteria to participate, please contact Catherine Madsen 512-638-2843 or cam281@txtstate.edu
Parkinson’s VOICE Research - Steven Darroh is a speech-language pathologist interested in working with voice issues in people with Parkinson’s Disease. He would like to interview some people with Parkinson’s, either over the phone or in person. The interview will likely last between 5 and 10 minutes, and will consist of a set of standardized questions. He is seeking to “hone in” on the biggest issues facing people with PD from a speech pathology standpoint. Please reach out to Steven, if you’re interested by email, call, or text. Steven Darroh, stevendarroh@gmail.com 713-899-6750
Healthy Aging Research - Researchers from Texas A&M University are inviting those who are 65 years or older (up to 2 participants per household) to take part in a survey on healthy aging. The survey will take about 20-30 minutes to complete, and you will be offered $10 gift card. If you have any questions, please contact the study director, Sinan Zhong, at 979-255-6755 or email zsn198838@tamu.edu.
Fox Foundation and 23andMe Launch Data Platform Fox DEN to Help Accelerate Research Efforts - The Michael J. Fox Foundation for Parkinson’s Research (MJFF) and 23andMe announced the launch of a data and analytics resource for researchers, based on patient experiences, that aims to improve clinical trial design and subsequently, therapies for Parkinson’s. Called the Fox Insight Data Exploration Network (Fox DEN), it’s the platform for Fox Insight, an online, MJFF-sponsored clinical study about health-related experiences from volunteers with and without Parkinson’s disease. Fox DEN features patient reported outcomes, de-identified (for privacy) genetic data, and information exploration tools from what’s known as the most expansive cohort in Parkinson’s investigations. click on this link to learn more: Fox Foundation and 23andMe Launch Data Platform Fox DEN to Help Accelerate Research Efforts
More Michael J Fox Foundation Clinical Trials - The Fox Trial Finder is an online clinical trial matching tool created by The Michael J. Fox Foundation to make it easier for Parkinson's patients and their loved ones to participate in Parkinson's research. To date, more than 30,000 volunteers have signed up to be matched with more than 300 ongoing PD clinical trials worldwide.
Click here to sign up: https://www.michaeljfox.org/page.html?Find-a-Trial
ClinicalTrials.gov - ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world. Click here to see current clinical trials - https://www.clinicaltrials.gov/
More clinical trial resources:
✦Lewy Body Clinical Trials - https://www.lbda.org/rcoe/current-clinical-trials
✦PD Trial Tracker - analyzing ClinicalTrials.gov for Parkinson’s specific trials — http://www.pdtrialtracker.info
✦ Fox Trial Finder — https://foxtrialfinder.michaeljfox.org
✦ European Parkinson’s Disease Association — https://www.epda.eu.com/about-parkinsons/treatments/clinical-trials/
✦ UK NHS Clinical Trials Gateway -- https://www.ukctg.nihr.ac.uk
✦ Cure Parkinson’s Trust — https://www.parkinsonsmovement.com/clinical-trials/
✦ Parkinson’s Study Group — http://www.parkinson-study-group.org/clinical-trials
✦ American Parkinson Disease Association --https://www.apdaparkinson.org/research/clinical-trials/
✦ Center Watch --https://www.centerwatch.com/clinical-trials/listings/condition/117/parkinsons-disease/
✦ My Parkinson’s Team — Read more about the RESTORE-1 Clinical Study
✦ PSP Research - AllStripes is a research platform designed for rare disease, where patients can contribute to research and accelerate drug development. For more information: https://www.allstripes.com/psp
| 20201027_psp_allstripes_ucb_flyer_irb_approved.pdf |
