Lewy Body Dementia
Lewy body dementia (LBD, sometimes referred to as Lewy body disorder) is an umbrella term that includes Parkinson's disease dementia (PDD) and dementia with Lewy bodies (DLB), two dementias characterized by abnormal deposits of the protein alpha-synuclein in the brain. LBD is considered one of the four Atypical Parkinsonisms.
The Lewy Body Dementia Association has support groups across the United States. Information about local support groups appears below:
The Central Texas "Living with Lewy" support group meets the 2nd Monday of each month at 2pm. We meet by zoom and participants MUST have two devices in which to join...the more stable (typically a desktop/laptop computer) and another for the care partner (can be desktop, laptop, iPad or iPhone/android). We will begin the meeting together with introductions, guidelines and introduction of our topic. We will then break out into two groups - Sarah will lead our Care Partner group and Heather (a Licensed Marriage & Family Therapy Associate) will lead our diagnosed group. We will then come back together and close our meeting.
The Central Austin Lewy Body Dementia Support Group meets the 1st & 3rd Saturdays of each month at 10am by ZOOM. Must have video/audio to join the group. Call/email Sarah Hyde-Williams (Sarah@SLAAustin.com / 832-794-8810) to be added to the email distribution list.
For any questions regarding ANY of the Central Texas groups, please reach out to Sarah Hyde-Williams by calling 512-593-7669 or texting 832-794-8810... or by email at firstname.lastname@example.org.
Our NEW South Austin/Kyle Lewy Body Dementia support group meets the 3rd Thursday of each month and is held at Orchard Park of Kyle at 4701 Ratcliffe Drive, Kyle. We will meet in the private dining room. ALL are welcome, this is a FREE and open to the public event. NOTE:
This group is on indefinite HOLD until after COVID.
GENTLE REMINDER - our groups are for care partners only (with the exception of our new Georgetown group), not particularly for the care recipient. Due to the sensitive nature of our discussions, and that you, as a dedicated care partner, need time away to refresh your mind and body with the loving support of others who are walking this journey as well. If you need someone to care for your loved one while you attend one of our groups, please give me a call and we can discuss your options.
Here is a link to our www.lbda.org listing of our Central TX groups https://www.lbda.org/local-support-groups/?state=TX